Tuesday, May 21, 2024

Hemophilia Community Celebrates Success Over World Hemophilia Day 2024

Hemophilia Community Celebrates Success Over World Hemophilia Day 2024

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Manila, Philippines – Hemophilia Advocates-Philippines (HAP), a national nonprofit organization for people with hemophilia and related bleeding disorders, proudly announces the success of its latest awareness campaign. Held at the Festival Mall, Alabang on April 13, 2024, World Hemophilia Day brought together about 250 patients, members, supporters, and advocates from across the country in a collective effort to raise awareness
for those affected by hemophilia.

Hemophilia is a rare genetic bleeding disorder that affects about 10,000 Filipinos. However, in the 2020 study conducted by the World Federation of Hemophilia, only around 1,600 cases have been diagnosed and registered.

Through educational discussions led by HAP’s medical advisors from the Philippine
Children’s Medical Center and Philippine General Hospital, attendees, mall goers, and Facebook live spectators learned more about hemophilia care in the present age. The gathering also highlighted testimonies of how HAP’s partnerships with other organizations created opportunities and positive impact to improve the quality of life of persons with bleeding disorders.

This event also strengthened our efforts to call forth the attention of the Philippine
government to hasten the passage of the Bleeding Disorders Standard of Care Bills that have been pending in the House of Representatives and the Senate.

The generosity and compassion displayed by the guest speakers, advocates, and
performers including Peter Harbinson a renowned Australian Opera Singer, underscored the importance of coming together to increase awareness and provide opportunities for individuals living with bleeding disorders to lead better lives.

HAP successfully commemorated World Hemophilia Day thanks to the commitment of its volunteers, donors, as well as foreign and local partners including Festival Mall-Alabang, Save One Life, Project Share, Virtualahan, Jollibee, and the media sponsorship by Inquirer.net, Cebu Daily News Digital, Pop!, Preen.ph and Be An Inquirer. The funds raised through donations and merchandise sold will directly support HAP’s initiatives to make information accessible and comprehensive care available at the grassroots level.

“We are overwhelmed by the incredible support we received during this event,” said
Andrea Trinidad, HAP’s President. “Every donation, every step taken, and every
conversation had a meaningful impact on the lives of those affected by hemophilia.
Together, we are making a difference and providing hope for a brighter future.”

HAP extends its deepest gratitude to everyone who participated, donated, and supported the event. Your generosity and commitment to our cause are invaluable, and together, we are creating a world where individuals with hemophilia can live healthier, happier lives.

For more information about Hemophilia Advocates-Philippines and how you can continue to support our mission, please visit hemophilia.ph or contact our Executive Director Ms. France Alviz at 09955505315.